Description & Citation--Study No. 4354 | | | ICPSR Study No.: | 4354 |
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Persistent URL:
| http://dx.doi.org/10.3886/ICPSR04354 |
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| | | Title: | Resources for Enhancing Alzheimer's Caregiver Health (REACH II), 2001-2004 |
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| | | Alternate Title: | REACH II, 2001-2004 |
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| | | Principal Investigator(s): | Richard Schulz, University of Pittsburgh. University Center for Social and Urban Research |
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| Louis Burgio, University of Alabama. Applied Gerontology Program |
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| Alan B. Stevens, Texas A&M University. Health Science Center. College of Medicine |
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| Robert Burns, Memphis Veterans Affairs Medical Center |
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| Sara Czaja, University of Miami. Miller School of Medicine. Center on Aging |
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| Dolores Gallagher Thompson, Stanford University. Stanford School of Medicine. Department of Psychiatry and Behavioral Sciences |
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| Laura N. Gitlin, Thomas Jefferson University. School of Health Professions. Center for Applied Research on Aging and Health |
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| Steven Belle, University of Pittsburgh. Graduate School of Public Health. Department of Epidemiology |
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| Linda Nichols, Memphis Veterans Affairs Medical Center |
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| | | Funding Agency: | United States Department of Health and Human
Services. National Institutes of Health. National Institute on Aging |
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| | | Grant Number: | AG13265 |
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| | | Bibliographic Citation: | Schulz, Richard, Louis Burgio, Alan B. Stevens, Robert Burns, Sara Czaja, Dolores Gallagher Thompson, Laura N. Gitlin, Steven Belle, and Linda Nichols. RESOURCES FOR ENHANCING ALZHEIMER'S CAREGIVER HEALTH (REACH II), 2001-2004 [Computer file]. ICPSR04354-v1. Pittsburgh, PA: Richard Schulz, Steven Belle, University of Pittsburgh/Tuscaloosa, AL: Louis Burgio, University of Alabama/College Station, TX: Alan B. Stevens, Texas A&M University/Memphis, TN: Robert Burns, Linda Nichols, Memphis Veterans Affairs Medical Center/Miami, FL: Sara Czaja, University of Miami/Stanford, CA: Dolores Gallagher Thompson, Stanford University/Philadelphia, PA: Laura N. Gitlin, Thomas Jefferson University [producers], 2004. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 2006-10-27. doi:10.3886/ICPSR04354 |
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| | | | Summary: | Built upon the findings of RESOURCES FOR ENHANCING
ALZHEIMER'S CAREGIVER HEALTH, 1996-2001, BASELINE AND FOLLOW-UP DATA
[ICPSR 3678], REACH II designed and tested a single multi-component
intervention among family caregivers of persons with Alzheimer's
disease or related disorders. The overall objectives were (1) to
identify and reduce modifiable risk factors among diverse family
caregivers of patients with Alzheimer's Disease or a related disorder,
(2) to enhance the quality of care provided to the care recipients,
and (3) to enhance the well-being of the caregivers. REACH II is the
first project to simultaneously test a comprehensive caregiver
intervention in three distinct racial/ethnic groups: Hispanic/Latino,
Black/African-American, and White/Caucasian. The intervention was
based on a risk-appraisal approach in which five areas of
risk--depression, burden, self-care, social support, and patient
problem behaviors--that are central to caregiver well-being and
quality of life were matched to corresponding intervention
components. These components included education, skills to manage
troublesome care-recipient behaviors, social support, cognitive
strategies for reframing negative emotional responses, and strategies
for enhancing healthy behaviors and managing stress. Consistent with
this approach, the primary outcome was a multivariate quality of life
indicator that assessed caregiver depression, burden, self-care,
social support, and patient problem behaviors. Two hallmarks of
caregiver intervention studies--caregiver clinical depression and
patient institutionalization--were assessed as secondary outcomes. The
dataset names listed in this collection include the shortened name of
the form administered. |
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| | | Subject Term(s): | Alzheimers disease, caregiver burden, caregivers, dementia, emotional states, families, health status, health care utilization, home health care, intervention, mental disorders, mental health, minorities, older adults, outreach programs, psychological wellbeing, stress |
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| | | Geographic Coverage: | Alabama, Birmingham, California, Florida, Memphis, Miami, Palo Alto, Pennsylvania, Philadelphia, Tennessee, United States |
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| | | Time Period: | 2001 - 2004 |
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| | | Date(s) of Collection: | 2001 - 2004 |
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| | | Unit of Observation: | caregiver, care-recipient, caregiver/care-recipient dyad |
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| | | Universe: | Family caregivers of people with Alzheimer's disease or a
related dementia who reside in noninstitutional settings. |
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| | | Data Type: | survey data |
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| | | Data Collection Notes: | All datasets can be linked using the variable: ID.
Dataset 1 (AE: Caregiver/Care Recipient Acute Baseline Alerts/Adverse
Events) can be linked to Dataset 2 (AF: Acute Baseline Alerts/Adverse
Events Follow-Up Report) using variables: ID, EVENT, and EVEDAT. |
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| | | | Sample: | Convenience sample |
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| | | Mode of Data Collection: | personal interview |
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| | | | Note: | A list of the data formats available for this study can be found in the
summary of holdings. Detailed file-level information (such as record length, case count, and variable count) is listed in the
file manifest. |
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| | | Original ICPSR Release: | 2006-10-27 |
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| | | Dataset(s): | - DS1: AE: Caregiver/Care Recipient Acute Baseline Alerts/Adverse Events Forms Guidebook
- DS2: AF: Acute Baseline Alerts/Adverse Events Follow-Up Report Guidebook
- DS3: BA: Baseline Battery Guidebook
- DS4: BR: Bereavement Battery Guidebook
- DS5: DA: Intervention Delivery Assessment
- DS6: DC: Discontinued Battery
- DS7: FO: Follow-Up Battery
- DS8: IC: Interventionist Characteristics
- DS9: OP: Off Protocol Form
- DS10: PL: Placement Battery
- DS11: RF: Randomization Form
- DS12: RT: Care Recipient Tracking Form
- DS13: SC: Screening Form
- DS14: SP: Short Portable Mental Status Questionnaire (SPMSQ)
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